Ok so a little explanation of the "title"... We had Elliot's one week check-up after his shunt revision and we were given the go-ahead to continue with our summer travel plans. Let's just start by saying that I have been looking forward to our summer plans all summer and have been soooo excited to go back to Pennsylvania and Ohio to show off Elliot to many friends and family. Well, the next day, we hopped in the car and drove 30 hours to Clearfield, PA! Elliot traveled great during the nights and not so great during the day, but can you blame him, I wanted to get out of the car as much as he did! While is PA, Elliot got to meet his Aunt Annisse and Uncle Scott and his cousins Corinne and Nick. We were also fortunate to see many other friends and some family until our trip was cut short...dun dun dun...
After being there for a few days I was nursing Elliot and mid-eating he started throwing up...ALOT. Now I know that lots of babies throw up, but the only time Elliot has ever thrown up has been when his shunt has malfunctioned. So that is all we have ever known or experienced with him. That night he was acting "off" and not wanting to lay down, which again, looked very similar to the last malfunction. After a long night of going back and forth and not knowing what to do, we decided it was in Elliot's best interest to head home to Colorado. Its hard because we are sure there are great Neurosurgeons in PA, but they aren't Elliot's Neurosurgeon and its a hard thing to trust someone with your child, especially your child's brain! After Elliot's last malfunction we told ourselves that we would trust our instincts better the next time something like this occurred...well boy did my instincts feel a little foggy, I'm still not sure they are quite there. So the next morning, Byron and Filson started driving back to Colorado and I hopped on a plane with Elliot. Let's just say, I should have the strongest arms ever! It was not easy to travel by myself with Elliot, that kid is HEAVY and he did not want to be put down in his stroller or sleep, so it was a long day. Byron had an even longer day considering he was driving, but he did pick up a driving buddy in Chicago to keep him company and help with the rest of the trek (big thanks to Pam!).
So this whole time, we were in constant communication with Children's in Denver and the plan was to watch Elliot and if his symptoms became more acute to come in. Lucky for us, my mom was in Colorado because Blair and her drove out together a few days earlier to move Blair back into school at CSU. So, my mom came and picked me up at the airport and we headed home to continue to monitor Elliot. Byron made it home the next morning and then the monitoring continued. So after a few days on edge and not knowing and "monitoring" little man....HE IS JUST FINE! We will never really know what happened, but its possible that Elliot had some blockage and then it cleared on its own. We couldn't be happier that he is Ok and he didn't have to have another surgery so soon, but at the same time its very frustrating.
We would have never done it differently, but it is a little frustrating to not be spending our last couple weeks of summer visiting family and friends. We were lucky enough to have a few days with Byron's family, and then to spend some time with my mom back at our house...but boy did I want to get out of Colorado for a couple of weeks. We have tried to remain positive about everything with Elliot's condition and so far he is doing amazing and beating all odds in our minds, but I guess this past week gave me a little glimpse of how Hydrocephalus does affect our lives. I hate hate hate hate that Elliot will have to deal with this his entire life, but Byron and my new favorite saying is, "it is what it is"...ok thats enough of the Debbie Downer in me. We are excited that he is doing great and Byron and I can't wait till he is old enough to tell us when something is wrong with his shunt!!! haha.
So on that note...we have another opportunity to raise money for Hydrocephalus research. We are attending the 8th annual HydroWALK in Denver in a month. In March all our friends and family helped us raise $1600 for the HydroWALK in Steamboat, which is AMAZING and we are so thankful for that. We have set up another donation page which makes it quite simple to donate, even a donation as small as $5 is greatly appreciated by all of us.
Alright, well we have one more week of summer left before Byron and I head back to work and we are soaking up every last summer minute with Elliot!
|Farmer Elliot, picking his own green beans|
|I love avocados!|
|Taking a nap on Uncle Scott|
|Aunt Annisse snuggles|
|I love sweet potatoes!|
|Corinne and Elliot sitting on the princess seat|
|Elliot says, "whats going on Grandma?"|
|Elliot says, "Grandma, but I love to eat my hands"|
|Elliot chews on everything with his new 2 bottom teeth|
|Snuggling up to Grandma|
|All eyes for Grandpa|
|Elliot and Alise|
|Elliot meets his great Grandma|