Friday, June 24, 2011

Lovin' Summer


We don't have too much to report.  We drove to Park City, UT over the weekend to visit our friends and to celebrate more babies to come.  Elliot was a champ on the drive to and from, didn't sleep too much, but was still a happy boy.  We have just been laying low at home and enjoying lots of walks around the neighborhood.  All is quiet (well as quiet as quiet can be) in the Straw home!

Future Accountant





Hat impaired

Found his thumb in the swing

Visiting Lauren in Park City, UT

Filson leaning on Elliot during our drive to Park City, UT

Drooly Boy

Its gettin' hot in here!

Mr. Big Eyes

video 

Elliot and his apple and squirrel

Tuesday, June 14, 2011

Life and Times of Elliot Straw

video 




Our little boy, or should I say big boy...weighed a whoopin' 16lbs at his 4 month check up last week.  He continues to be in the 75th percentile for weight and the 97th percentile for height and drum roll please...Elliot's head finally is on the scale, its at the 97th percentile but hey its the little triumphs in life.

Elliot went camping last night and we all survived.  It was a trial and error camping trip with our friends Chris and Ann and their two kiddos.  We had a great campsite on the Poudre and the only thing we need to do different next time is get a tent that fits our new family of 4...which includes the 115lbs baby Filson.

Short and sweet for now!

Playtime

I'm 4 Months Old

Just hanging with dad in my diaper

Sleeping "buns" up

Elliot and his girlfriend Dayle chillin' while the parents set up camp

Nap time in the tent

Taking in this whole camping experience

Man and his boy in the wilderness

Snuggles at the campfire

Yep, we let our kid take naps in the back of the car

We love our Bumbo now!

Such a ham

Eating an apple already





Saturday, June 4, 2011

The Latest and Greatest

Elliot has kicked off his summer with a bang...

We took an impromptu trip to Cincinnati for a couple of days and Elliot experienced his first plane ride.  Needless to say, he is a better traveling right now than his mom and dad.  We were a hot mess going through security with all our baby junk and Elliot just breezed through.  It was fun to show Elliot around Cincinnati.  We were able to show him off to a few of his fan club members while we were there but we will be back again towards the end of the summer to hopefully make some more rounds to the fans.  He had fun with his Aunties, got to meet his Great Grandma and I'm not sure his Grandma put him down for more than 30 seconds.  Elliot got to experience Montgomery Inn Ribs with his Dad and Skyline Chili will have to wait for our next visit...I know I know, I can't believe I was in Cincinnati and didn't go to Skyline, but we had a jam-packed 2 days and never found the time. 

Alright now for the medical update.  We spent the ENTIRE day at Children's yesterday with Elliot's routine check-ups.  He started off the morning with a quick MRI...and usually Elliot is a champ through these 3 minute MRI's, but I think the older he is getting the more he realizes this is not normal and he doesn't like it.  He screamed his way through while Byron and I stood in the room helpless and trying to talk to him over the LOUD machine noises.  With that out of the way, we headed up to neurosurgery to meet with Dr. O'Neill.  Lots has changed with Elliot's shunt since our visit a month ago so we were excited to hear Dr. O'Neill's impressions.  Elliot's shunt finally does not have that fluid sac around it and the doc was very pleased to see that his shunt was without a doubt doing its job.  He was impressed with Elliot's head control and even held him a little this time so that Elliot could show him all his new tricks.  Elliot even slimmed him a little with his copious amount of saliva.   He then pulled up Elliot's MRI and his first word was "Wow", but a good kinda "wow".  Elliot's brain has filled his entire skull now!!! and his lateral ventricles (which were the area in his brain that was swollen with Cerebral Spinal Fluid) are down to a "normal" size.  Elliot's ventricles at birth were at 55mm and yesterday they were at 5.5mm, which is amazing news to hydro-parents ears. 

We did ask Dr. O'Neill about Elliot's head and its future, ha.  I'm going to try and explain this so it makes some sense but bear with me.  Elliot's head is elongated length wise and narrow width wise.  At this point his skull sutures are still overlapping which typically means that his skull has room to grow which is normal for any infant.  The only problem is that we are unsure if his skull has fused in this position which would mean that as Elliot grows his head will only grow back (alien-style) vs. out and more "roundish".  So...what does this mean for Elliot?  Dr. O'Neill first wants to turn up his shunt valve a bit which means less fluid goes through his shunt to his belly and more fluid builds up in his head (sounds kinda crazy that now we want a little fluid build up in his brain but its teeny bit of fluid build up unlike the massive build-up he was born with).  With this extra fluid build up it will hopefully put some pressure on his brain to push his skull out a bit to fix its shape naturally.  Dr. O'Neill is going to give it 3 months or so and if it fixes itself...which it will...then great, no big deal.  But if it doesn't fix itself then Elliot will have to have reconstructive skull surgery.  The surgery sounds scary but Dr. O'Neill just wants to prep us in case this is the route we have to go with Elliot, and they really like to do the surgery before 9 months.  With how well Elliot is doing, I just think this kid has it in him to fix it himself...and of course Byron and I will talk to him every night about the surgery to scare him into fixing his skull himself...kidding only kidding...

Overall it was great news from Dr. O'Neill who again mentioned that he is thrilled with how well Elliot is doing since he had quite an impressive case of Hydrocephalus (we like that he used the word impressive instead of severe).  After this appointment we headed to Noodles N Company for some much deserved celebratory lunch and then back to Children's for Elliot's ophthalmology appointment.  They had to dilate his eyes which consisted of the nurse having to pry open his little eyes, but after the drops were in, he breezed through the rest of the appointment.  At this point, Elliot's vision is age-appropriate and his optic nerve does not have any damage on it from the initial swelling of this brain.  So once again baby boy has exceeded all expectation.  After finding out that Elliot has hydrocephalus we never imagined he would be doing this well this quickly.  We are thrilled and can't wait for his 4 month check up next week to update his pediatrician on all the good news.   Byron and I couldn't have asked for a better anniversary present!

Deep in thought

Checking out scene

Big Eyes

First Plane Ride

Hanging with Daddy on the plane

Meeting Great Grandma

Ribs King

Everyone loving on Elliot

Hot and sticky in Cincinnati

Loving on Mr. Elephant

Happy Boy

Drool City

Lovin' his Bumbo Seat

Babies in shorts are the cutest thing ever        


Flashback to old MRI's

Newest MRI at almost 4 months old